Muscular Dystrophy WA 50th Anniversary
In 2017 Muscular Dystrophy WA celebrates 50 years of funding research and supporting the Western Australian Muscular Dystrophy Community.
Our focus for the year is threefold – recognition, acknowledgement and awareness.
Founded in 1967, Muscular Dystrophy WA was borne by Professor Byron Kakulas in conjunction with a small group of parents with the Rotary Club of West Perth.
Making the momentous discovery that a paralytic disease affecting the Rottnest Island Quokka could be treated for vitamin E deficiency, Professor Kakulas demonstrated the potential for previously thought incurable muscle diseases to be treated.
Along with stimulating worldwide research, Professor Kakulas worked with the Rotary Club and
other committed community members to gain funding to provide social support for those living with
While Muscular Dystrophy WA’s pillar of strength has been their commitment to world-renowned
research, our crucial aim today is to provide practical help to improve the quality of life of people
living with muscular dystrophy.
Muscular Dystrophy WA CEO, Hayley Lethlean, says, “Muscular Dystrophy WA believes no one
should be defined by their condition. Thanks to the support of our many sponsors, donors and
volunteers throughout our 50 year history, we continue to serve the Muscular Dystrophy
community, enabling individuals to do the things they strive to achieve. Together, we approach
challenges to create solutions that empower full lives.”
For any queries relating to our 50th Anniversary please contact Mark Hullett – Partnerships and Fundraising Manager – 9380 3400
MUSCULAR DYSTROPHY WA 50TH ANNIVERSARY BREAKFAST – 13 April 2017
On 13 April 2017, over 230 past and present supporters gathered at Frasers State Function Centre for breakfast to celebrate Muscular Dystrophy WA’s 50th Birthday. Following in the footsteps of our founders who gathered to form our Association some 50 years earlier to the day, together we celebrated, recognised and reflected on the past five decades.
We celebrated what has been achieved so far, the many scientific advances and welfare support across many facets of our community. Not the least of these has been our very successful Carrier Detection and Genetic Counselling program which has helped so many families. We highlighted just how far we’ve come in connecting communities, families and care and providing practical help to improve the quality of life for people living with muscular dystrophy today.
We recognised the people, efforts and supporters that have got us to where we are today – the volunteers, Honorary Life Members, partners, sponsors and of course our Muscular Dystrophy Community. And we reflected on those who have been part of the journey, who are no longer with us today.
Perhaps most remarkable of all, is the sense of genuine connection, spirit and community that existed in the room that morning. It is a testimony to the heart and soul of our organisation. It is the key driver that has guided us for the past 50 years, and will see us still standing strong in another 50. Thank you.